Tag Archive | stories


We all have been granted a limited time… eventually all of us will end up underneath some sheet, never to wake up.

Long ago, a friend shared a post on Facebook in remembrance of his friend who battled cancer and was laid to rest on January 23, 2010. It was so hauntingly beautiful that it left me aching for a while. I somehow wanted to share her tale of courage. Many of the beautiful stories go viral but there are certain battles which are only recorded in the books of the ONE who dwells in heaven.

She wrote : “update on my health: I’m pretty sure I’m on the last stages where all I wanna do is sleep. But you guys make this so peaceful and a beautiful exit for me. I’m completely ready whenever it’s meant to happen, Gabby thank you for that poem, it made me cry likr a little girl, I’m using that at my funeral I hope you don’t mind, you’re such a beautiful writer and a beautiful person I love you too”
– Karina Araujo

It was hauntingly beautiful for the way how she could see it coming and still make peace with it. Embracing the days left, still smiling and running into the arms of death. What is it that they see, that we don’t ? Would we ever see how big their brave is?

Now, I quote the words my friend wrote :

“Happy Birthday, Karina!
A sweet friend passed away about 5 years ago. She fought the good fight against a strong enemy, cancer.
I monitored her last few months of LIVING and how she traveled aimlessly (but with aim), visiting places that she would otherwise likely not have gone, made new friends, tried new things and most important of all, just lived a completely incredible 70+ years of life all within the last year of her corporeal life.
I do not doubt that it was a scary, soul trembling endeavor. There is something to be said about facing an inevitable exit at the crossroad where despair, anxiety and fear of death meet calmness, acceptance and reverence of the design, that makes it a little easier to swallow but then again…..
Karina took an absolutely beautiful journey. I look at life and wonder how many of my friends are truly seizing the day and living their life. While not necessarily a believer in “your” god, I’m a firm believer in destiny. I think life is more of a “by design than an ill-planned, haphazard or accidental” occurrence wrapped in chance.
If by design, its easier to accept the journey. Ummm maybe in some way, that’s my religious protective blanket!
Will you wait until such an enemy has you in its target before you start living or do you wake up everyday and say,
“if this here is my last day, gooooddddamn it, immma immma fuck it! I’m going to rock out, even if my _____ is(can) not(be) out.”

… In the end, we all end up underneath some sheet. We become a worm feast. We go back as dust in the wind. Nothing of us remains. All that we can do is to live this one and only endless, tragic yet beautiful life, in such a way that when we exit the physical altar of life and travel to a place to whose bourn from where we cannot return, we would have left behind a fragment of our soul on Earth, in every life we would have touched. 

Facebook is a beautiful community that connects so many people, and their lives are intertwined and some lessons remain etched in our memories.

I hope stories of everyday heroes stay with us all and keep us strong.


One in a Million : A Short Promise of Life

What will we do if we were told that we don’t have much time left? That the light of life will slowly be extinguishing? And there will be no room to accomplish the things we have been avoiding for long? To confess a love we held captive inside of our hearts? To roll back time to spend it with the family we had not been seeing for a long time? 

One day, there will be no more time to do the things you have been wanting to do or still want to do. The only time is : ‘NOW.’ And it is as good as any other day.

A 28 year old boy, Ritchii Kara, with just 14 months of life promised to him, after being diagnosed with Variant Creutzfeldt-Jakob Disease, human equivalent of mad cow disease, says : I think if you’re just going to sit about and be sad, what’s the point in going on anyway?

Ritchii Kara from Brighton who has just months to live after being diagnosed with CJD

With all the awful and horrible things this disease puts your through, he is wasting no time in fulfilling dreams on his “bucket list”, including a holiday to Hong Kong and a trip to for a gay pride festival in Hamburg, Germany, where Danish singer Whigfield, famous for her 90s hit Saturday Night, performed a song he had written. He even is raising awareness about CJD.

For being so benevolent and doing all of this, he is going to heaven.

I wish everyone affected with this incurable disease had a shot at the silver lining of life. I wish my uncle had it. I wish many others who have left the physical altar of life had that chance. My uncle had planned so much way ahead of time.. that once he retires from the Ministry, he’d travel the world. Alas, many times, life doesn’t work according to plans.

Oh, the unfinished life. Some times in life, we can surely take out time to read such stories and maybe sob a little and get inspired. These are heart warming and heart aching, at the same time. :’)

Meanwhile, there are other everyday heroes trying to spread awareness about this disease. Mr. Trevor Baierl created a CJD Documentary titled ‘One in a Million,’ which has faced rejection at the 52nd Ann Arbor Film Festival and American Documentary Film Festival. BUT it may also interest you to know that this documentary was also screened at the 2014 Laughlin International Film Festival where we it won the first ever Filmmaking for Humanity Award. In the times when movies and documentaries teach us a lot and facing rejections by these festivals only shows us that maybe, just maybe, no one wants to hear really about Prion Disease. Through consistent approach, Trevor seeks a worldwide distribution deal so that we can raise awareness and funding for research. Prion Disease research is leading the way to find treatments and hopefully a cure for not only Creutzfeldt-Jakob Disease, but also Alzheimer’s, Parkinson’s and ALS.

Where many people gained a few likes on Facebook by sharing their ‘Ice Bucket Challenge’ videos, do they care enough to at least open the damn links and videos from this blog post and share the word of Brain Killer diseases with the world?

Are you listening? Because we are watching? Do you care enough?

WATCH ON VIMEO : One in a Million : A CJD Documentary

I thank Trevor for all the love and hardwork he has been doing to help educate people in understanding this horrific disease.